Silent Auction
Sports Items
Ticket Items to Sporting Events
Dinner & Theatre Packages
Hair Salon Visits
Household Items
Patio Furniture Set
Jewelery
Harley Stuff
Floral Arrangement
Cigar Package
Tandem Skydiving Outing at Sky Knights in East Troy
Live Auction
Dream Package....Oprah! Two Tickets to the Oprah Show! Overnight stay and Chicago-Marriott Downtown, Restaurant Certificate and framed, autographed photo of Oprah! - courtesy of HARPO productions - Hazel and Janet Tveita (there is also another photo of Oprah in the silent auction).
Framed, autographed Ryan Braun jerseyphoto - courtesy of ASF Board
Framed and autographed Tony Romo jersey - courtesy Tony Romo and ASF Board
Stocked wine refrigerator - courtesy ASF Board
Chance-of-a-Lifetime Brewers Mini-Sausage Race Package - Five children will have the opportunity to run a relay race during a Brewers game dressed as the sausages). Also includes 72 oz. of Johnsonville Sausage. - Courtesy of The Milwaukee Brewers and William Krostag.
And even more!
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Aicardi Syndrome Foundation -Wisconsin Chapter
1000 Park Avenue
Oak Creek, WI 53154
http://www.aicardisyndrome.org/ Aicardi Syndrome Foundation Fact Sheet
Aicardi Syndrome is a rare genetic disorder identified by the French Neurologist, Dr. Jean Aicardi in 1965. This Syndrome is defined as a rare disorder. The number of identified cases of children with Aicardi Syndrome is very difficult to calculate accurately, but has been estimated at 300 - 500 worldwide.
Aicardi Syndrome is characterized by the following "markers":
§ Absence of the corpus callosum, either partial or complete (the corpus callosum is the part of the brain which sits between the right and left sides of the brain and allows the right side to communicate with the left.)
§ Infantile spasms (a form of seizures)
§ Lesions or "lacunae" of the retina of the eye that are very specific to this disorder
§ Other types of defects of the brain such as microcephaly, (small brain); enlarged ventricles; or porencephalic cysts (a gap in the brain where there should be healthy brain tissue)
Children are most commonly identified with Aicardi Syndrome between the ages of three and five months. A significant number of these girls are products of normal births and seem to be developing normally until around the age of three months, when they begin to have infantile spasms. The onset of infantile spasms at this age is due to closure of the final neural synapses in the brain, a stage of normal brain development. The known age range of affected children is from birth to the late forties.
Treatment of Aicardi Syndrome primarily involves management of seizures and early/continuing intervention programs for developmental delays. Prognosis for these children varies, though all experience developmental delays, typically moderate to severe mental retardation. Published medical information in professional journals is somewhat limited and these articles are written by and for specialists. A limited bibliography of these journal articles can be found in our web site. Genetic research is ongoing into the cause of this disorder and the Aicardi Syndrome Foundation member families continue to be active participants in several research projects.
Services for the families include:
- Support
- Information
- Research
- Resources
- Events
- Adaptive equipment
Aicardi Syndrome is a rare genetic disorder affecting females, characterized by seizures, mental retardation, eye retinal lesions, and brain defects.
ASF is a non-profit 501 (c) (3) organization. Tax ID is E9957-3806-03
Board of Directors
WI Chapter
President:Terry J. Tveita Vice President:Julie A. Litza Secretary:Linda M. Tveita Treasurer:Jim Brick Officers:Pam E. Albrecht Dave Brazeau Katie M. Brick Cynthia M. Cooper Linda Harrison Wayne C. Litza Mary anne Mlodzik Sergeant at Arms: Warren C. Litza
